Resources
Brain conscious ORGANIZATIONS
Brainstreams - Their mission is to provide leadership for developing, driving and implementing a provincial strategy in BC to improve the lives of people who live with acquired brain injury.
BrainLine - All things brain injury and PTSD.
Concussion Legacy Foundation: Through this organization, a patient can donate their brain to research. Their website has information on CTE, PCS and a plethora of resources to check out.
Concussion Game Plan: This website was created by one of our own patient contributors. She has compiled her concussion advise and is a fantastic resource.
LoveYourBrain: This foundation focuses on yoga, meditation and loving the brain. Founded by ex-pro-snowboarded Kevin Pearce and his brother, Adam, you can learn how Kevin’s journey lead to this organization in the HBO documentary THE CRASH REEL.
NeuroTalk: This blog type forum, is where our founder, Audrey Lambidakis found a lot of her concussion treatments. Check it out and ask a question or read through the hundreds of already answered questions. This is a great resource for patient support.
NPR’s Traumatic Brain Injury Stories - TBI stories covered by NPR
SameYou - A Charity started by Emilia Clark, with aims to bring help young people find recovery.
Save A Brain Foundation - A Utah based Non-Profit whose mission is to provide education, encourage prevention and spread awareness of the long term mental & physical effects of Traumatic Brain Injuries (TBI) and concussions.
Shawn Dollar - Shawn Dollar is a 2x Guinness World record holder for the big wave ever surfed. He documents his journey through recovery after a brain injury in 2015. Shawn shares his experiences and insights to provide support and guidance to others who may be dealing with similar injuries or seeking to understand the challenges of concussion recovery.
Books
About Brain Injuries:
Brain Injury Survival Kit: 365 Tips, Tools & Tricks to Deal with Cognitive Function Loss by Dr. Cheryle Sullivan MD
Coping with Concussion and Mild Traumatic Brain Injury: A Guide to Living With the Challenges Associated with Brain Trauma by Dr. Diane Roberts Stoler, Ed.D and Barbara Albers Hill.
Concussion, Traumatic Brain Injury, mTBI Ultimate Rehabilitation Guide: Your holistic manual for traumatic brain injury rehabilitation and care (Life After Stroke or TBI , Living with Hemiparesis) by Leon Edward & Dr. Anum Khan
Cooking after Brain Injury- Book 1: Easy Cooking for Recovery (Cooking after Brain Injury: Easy Cooking for Recovery) by Susana Stoica
Headstrong: Surviving a Traumatic Brain Injury by JoAnne Silver Jones
Successfully Surviving a Brain Injury: A Family Guidebook, From the Emergency Room to Selecting a Rehabilitation Facility by Garry Prowe
The Brain’s Way of Healing By Norman Doidge, MD
To Root & To Rise: Accepting Brain Injury by Carole J Starr
Survivors Experiences:
Brain on Fire: My Month of Madness by Susannah Cahalan
Chicken Soup for the Soul: Recovering from Traumatic Brain Injuries: 101 Stories of Hope, Healing, and Hard Work by
by Amy Newmark, Dr. Carolyn Roy-Bornstein & Lee WoodruffHead Cases: Stories of Brain Injury and Their Aftermath by Michael Paul Mason
Head Games: Football’s Concussion Crisis from the NFL to Youth Leagues By Christopher Nowinski
I’ll Carry the Fork by Kara Swanson
Over My Head: A Doctor's Own Story of Head Injury from the Inside Looking Out by Claudia Osborn
Prognosis: A Memoir of My Brain by Sarah Vallance
Turn the Lights On! : A Physician’s Personal Journey from the Darkness of Traumatic Brain Injury (TBI) to Hope, Healing, and Recovery by Chrisanne Gordon MD
Rebooting My Brain: How a Freak Aneurysm Reframed My Life by Maria Ross
Rise and Shine: The Extraordinary Story of One Man's Journey from Near Death to Full Recovery by Simon Lewis
Tales from the Blast Factory: A Brain Injured Special Forces Green Beret's Journey Back From the Brink by Adam Marr
The Ghost in My Brain: How a Concussion Stole My Life and How the New Science of Brain Plasticity Helped Me Get It Back By Clark Elliott, Ph.D.
To Root & To Rise: Accepting Brain Injury by Carole J Starr
Loved One’s of Survivors:
Being With Rachel by Karen Brennan
Falling Away From You: One Family's Journey Through Traumatic Brain Injury by Nicole Vinson Bingaman
In an Instant: A Family's Journey of Love and Healing by Lee and Bob Woodruff
Love You Hard: A Memoir of Marriage, Brain Injury, and Reinventing Love by Abby Maslin
No Stone Unturned: A Father's Memoir of His Son's Encounter with Traumatic Brain Injury Hardcover by Joel M. Goldstein & Lee Woodruff
The Brain Warrior's Way: Ignite Your Energy and Focus, Attack Illness and Aging, Transform Pain into Purpose by Daniel G. Amen, MD and Tana Amen, BSN, RN
The Traumatized Brain: A Family Guide to Understanding Mood, Memory, and Behavior after Brain Injury (A Johns Hopkins Press Health Book) by Vani Rao & Sandeep Vaishnavi
The Syrup Maze: An Inspirational Journey Through Recovery from a Traumatic Brain Injury by Debbie Simpson
To Love What Is: A Marriage Transformed by Alix Kates Shulman
Where is the Mango Princess? A Journey Back from Brain Injury by Cathy Crimmins
By Medical Professionals:
Brain Injury Survival Kit: 365 Tips, Tools & Tricks to Deal with Cognitive Function Loss by Dr. Cheryle Sullivan MD
Concussion, Traumatic Brain Injury, mTBI Ultimate Rehabilitation Guide: Your holistic manual for traumatic brain injury rehabilitation and care (Life After Stroke or TBI , Living with Hemiparesis) by Leon Edward & Dr. Anum Khan
The Oxygen Revolution, Hyperbaric Oxygen Therapy (HBOT): The Definitive Treatment of Traumatic Brain Injury (TBI) & Other Disorders by Paul G. Harch M.D. & Virginia McCullough
The Brain Warrior's Way: Ignite Your Energy and Focus, Attack Illness and Aging, Transform Pain into Purpose by Daniel G. Amen, MD and Tana Amen, BSN, RN
The Brain’s Way of Healing By Norman Doidge, MD
Turn the Lights On! : A Physician’s Personal Journey from the Darkness of Traumatic Brain Injury (TBI) to Hope, Healing, and Recovery by Chrisanne Gordon MD
Children’s Books:
Amanda's Fall: A Story for Children About Traumatic Brain Injury (TBI) by Kelly Bouldin Darmofal
Daddy's Different: A Look at Brain Injury Through a Child's Eyes by G. Forest
Heads Up! The Story of Finn and Reef: A concussions book for children by Harley Rose Taich
Podcasts
Adventures in Brain Injury - Everything brain injury recovery.
Brain Injury Radio - People have heard about brain injury but they really don't think about until it happens to them, which at that point it is all they or anyone they know can talk about. It is a sinister injury that can change everything in a blink of an eye, and as it goes on misunderstood the dark side of a person a new person starts to emerge, spouses suddenly in a relationship with a stranger, even the survivor does not know themselves. Lost alone and frightened learn about it before it’s too late, before it can take you or a loved one’s life away forever, the more you know the better you will be. You are not along there are millions of us among you. We represent over 70% of those in prison and even more of the homeless. Together we can stop the devastating effects of this sinister injury that can last a life time. One that is big business over 75 billion a year, where the rich control the destiny of the lost for a buck. Let us make a world where we are accepted not jailed or isolated, empowered not controlled. One where we embrace this new person to be a better, braver, strong more creative and productive part of society.
Brain on Nature - This narrative documentary series follows Sarah Allely’s quest to find out why the natural environment helped her recover from her 2015 mild traumatic brain injury.
Brain Warriors Way Podcast - Podcast hosts Dr. Daniel Amen and Tana Amen are changing the way we look at the brain and its direct connection to all things wellness. From weight loss to love and happiness to overcoming mental conditions like anxiety, depression and ADHD: they dive deep into neuroscience. But as the show proves, they deliver practical, everyday tips for building the best brain and best life possible.
Your Guide To Avoiding Burnout & Surviving Grief - Created by Caregiver Dave, this podcast is geared to help caregivers cope with life as a caregiver.
Clinical Updates in Brain Injury Science Today (CUBIST) - Launched in May 2017, this series is for health care providers treating service members and veterans with traumatic brain injury. Each episode offers a brief analysis of current research relevant to clinicians.
Concussion Talk Podcast - Interviews with doctors, researchers, physiotherapists, and others in the field of brain injury.
Faces of TBI - Amy hosts a podcast series dedicated to traumatic brain injury (TBI) awareness. Created by survivors for survivors, raising awareness about TBI one podcast at a time.
HBOT in Wound Care - Everything you need to know about Hyperbaric Oxygen Therapy with the lead expert in the field, Dr. Paul Harch.
Heads Up - Created by the National Headache Foundation, this podcast goes over everything migraine related.
Heads 'N Tales Podcast - Talking Sports Injury Rehab, Prevention - Each week Kevin Saum brings you an inspiring athlete story of perseverance or expert knowledge in the field of sports health and safety. Just like flipping a coin, you can't control what happens to you in sports or in life, but you can always control how you respond. This is Kevin's response after suffering a traumatic brain injury in a high school football game and it will leave you feeling both inspired and informed.
JW’s Brain Waves - This show's main focus is to bring awareness to brain injuries.
NeuroNerds - Recovering from a stroke or brain injury can feel very lonely, but the NeuroNerds are here to help through their love of all things nerd! Each Monday, join Joe Borges and his co-host Lauren Manzano as they share stories from their personal recovery journeys; offer tips for coping and thriving; interview fellow survivors and experts; and talk about varying nerd topics from comics to superhero movie theories to video games and more. If you’re a stroke or brain injury survivor, a caregiver or family member of a survivor or just a big lover of nerd culture, this podcast is for you.
Movies
Concussion - Will Smith stars in Concussion, a dramatic thriller based on the incredible true David vs. Goliath story of American immigrant Dr. Bennet Omalu, the brilliant forensic neuropathologist who made the first discovery of CTE, a football-related brain trauma, in a pro player and fought for the truth to be known. Omalu’s emotional quest puts him at dangerous odds with one of the most powerful – and beloved – institutions in the world.
Crash Reel - Kevin Pearce suffered a near fatal traumatic brain injury while training for the 2010 winter Olympics. Kevin’s remarkable resilience was documented and transformed into the award winning HBO Documentary, “The Crash Reel,” which brought light to the experience of traumatic brain injuries.
My Beautiful Broken Brain - After suffering a stroke at age 34, a woman documents her struggles, setbacks and eventual breakthrough as she relearns to speak, read and write.